Chapter 12 - Theorizing in qualitative analysis

Exercise:

Interrogating Data and Refining a Theoretical Framework:

THEORETICAL FRAMEWORK OF ‘BIOGRAPHICAL DISRUPTION’

Bury, M. (1982) ‘ Chronic illness as biographical disruption’, Sociology of Health and Illness, 4(2): 167-182.

The key components of Bury’s theory can be summarized as follows:

 “Illness, and especially chronic illness, is precisely that kind of experience where the structures of everyday life and the forms of knowledge which underpin them are disrupted.” (Bury, 1982: 169 )

This disruption involves:

Taken-for-granted assumptions and behaviours Explanatory systems - Leading to a fundamental re-thinking of the person’s biography and self-concept

Responses may involve mobilization of resources  (Bury, 1982: 175)

I have also provided some summaries of the relevant papers.  The comments and findings I have chosen to highlight are of course, highly selective, and dependent on my own reading of the papers.  If you decide to read any of these papers in full you may well pull out different issues – my reading, after all, is only one amongst many possible interpretations.   Here, I would also point out the potential for employing a package such as N-Vivo in order to code your notes from your reading of the literature – just as you would do with your transcripts.  (The notes reproduced here have been coded using the package ATLAS-ti.)

You may find these codes helpful as you organize your thoughts on the papers you have read to reflect the ideas explored in your data.  You may also find that having read some of the papers you are encouraged to re-visit transcripts and re-code these utilizing new themes or sub-categories to which your reading has sensitized you.  I have employed a rough coding scheme for the notes I have taken from these papers, highlighting the issues that are also raised by the accompanying excerpts from a condensed set of transcripts derived from the same real-life study as those used in the Exercise at the end of the previous Chapter.  You may recognize some of the quotes and, in this, the exercise mirrors the real-world process of qualitative data analysis, as we ponder and re-ponder the same utterances and explore their multiple potential meanings.

Suggestions on How to Use this Exercise:
In workshops I sometimes suggest that individual small group members each read a different summary.  Of course, if you’re doing this exercise in conjunction with a taught course – or even engaging in it alone - you will have the opportunity to read these (and possibly other papers on this popular theme) in full.  Even if you only use the excerpts and opt to divide these amongst your small working group it may be helpful to swap these over.  You are likely to show them to each other in any case, as you work through this exercise:

N.B. I have not listed the accompanying papers chronologically, but have, instead, ordered them in a way that aids the developing argument and associated refinement of the various theoretical concepts invoked by the over-arching theme of ‘biographical disruption’.

You may wish to read the notes (and, indeed the data excerpts) whilst covering up the accompanying coding framework, allowing you to compare notes later.

Click on the links below to download the data excerpts to accompany this chapter:

N.B. When I use these data excerpts in workshops I usually photocopy them and literally cut them up.  You may find it helpful to do this and to use large pieces of paper (on the large table recommended!) in order to play around with grouping and re-grouping them under different themes, categories and sub-categories as you develop and refine these.  Again, you may initially choose to cover up the coding categories I have assigned to these excerpts and may be interested in trying out your own independent coding exercise.

Commentary on Exercise as a Whole:

Hopefully, this exercise will have provided a flavour of what is involve in the iterative process whereby you can extract relevant ideas from the available literature and use these to re-visit your data, refine your coding frame and develop new codes.  As well as allowing you to see data extracts in a new light such an exercise also allows you to engage with the arguments presented via theoretical frameworks and to see where these describe what is going on in your data and – even more importantly – where your own data may suggest that a qualification or amendment to the original propositions is required.  The papers summarized here demonstrated the relevance of the concept of ‘biographical disruption’ for understanding the experiences of individuals dealing with a range of chronic conditions.  However, they also question some of the ideas that underpin ‘biographical disruption’. 

In terms of the large literature on chronic illness, however, these papers are somewhat unusual.  In the years following the publication of Bury’s influential paper, the eagerness with which subsequent grateful researchers have seized upon the concept of ‘biographical disruption’ and the limits of their largely descriptive usage have, perhaps, over-emphasized the universality of this experience.  Several of the papers reviewed here point out that individual experiences may differ significantly – even to the extent that some people may not report the dramatic discontinuity and loss of identity and meaning commonly identified in other studies.  In addition, despite reporting some of features associated with ‘biographical disruption’ the impact of chronic illness and the ‘biographical work’ in which people engage need not always be negative: there may be some positive aspects.

The Exley and Letherby paper is of particular interest as it reflects on data generated by two independent studies on very different topics.  However, this serves to emphasize the salience of ‘emotion work’ as a strategy for dealing with and possibly minimizing the impact (of terminal cancer and sub-fertility, respectively) on relationships.  The data excerpts presented in this Exercise testify to the involvement of the couples in seeking to put such strategies into operation.  A few of the excerpts indicate that it is not only the couples who are engaging in such ‘emotion work’ – as friends and family ‘tip-toe’ around their feelings of vulnerability.  Indeed, one of the excerpts raises the possibility that couples may, at times, be forced by others to engage in ‘emotion work’. However, a couple of the excerpts suggest that the couples are also engaged in ‘emotion work’ with each other, as sub-fertility raises important and uncomfortable questions about the viability of their joint future.  This highlights another aspect of this dataset which challenges the inherently individual/biographical emphasis of Bury’s notion of ‘biographical disruption.  The couples interviewed for this study are wrestling not just with the implications of sub-fertility for their personal biographies, but with the implications for their biography as a couple.  Sub-fertility is a condition that frequently affects only one person in each couple and, thus – even if fertility treatment fails - childlessness is not a fate that need necessarily befall both – unless, that, is they remain together as a unit.

Williams’ paper poses some challenging questions, suggesting that ‘biographical disruption’ may be even more significant for the individuals involved than is their chronic condition.  He also points out ‘biographical disruption’ may be more pervasive than is suggested by its confinement to studying chronic illness.  His suggests that ‘biographical disruption’ may be a feature of responses to a wide range of ‘normal crises’ and, that, therefore, it may help to illuminate other transitions and situations that impact on identity and self-image.  Sub-fertility (which does not usually have a clinical cause) presents an interesting potential ‘case study’ of the relevance of ‘biographical disruption’ in the more general context of ‘coupledom’ and child-bearing.  This dataset, therefore, allows us to study the impact of ‘biographical disruption’ without having to contend with the onset and physical repercussions of chronic illness, which makes it more difficult to speculate meaningfully about the direction of causality.  The frequency and the poignancy with which the couples in this study invoked the tensions and challenges involved in the ‘biographical disruption’ associated with their experience of sub-fertility certainly indicate that sub-fertility is important as a social rather than clinical phenomenon - precisely because it disrupts their biography as individuals and as a couple.  It is not sub-fertility per se that is seen as the problem but, rather, the way in which it compromises futures, pasts and present relationships and identities.


 

 

Author: Rosaline Barbour

Pub Date: November 2013

Pages: 392

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